Joseph's
Life Story
On
June 16, 2003, I took a home pregnancy test. To my surprise,
it
was positive. On June 17th, the hospital confirmed that test.
We
were definitely pregnant and we couldn't have been more surprised
or
more excited. We were going to have another baby to add to
our
already precious family. The pregnancy went along just fine.
Our
baby decided to lay sideways in my stomach for most of the
pregnancy.
By December, he/she (we didn't want to know the gender)
had
turned to get ready for its appearance into the world.
On
January 1, 2004, Joseph Xavier was born.
Our
New Years Day baby was 7 1/2 weeks early and just as healthy
as
he could be. He weighed 4 lbs. 8 1/2 ozs. He was 17 inches
long
and born at 10:42 p.m. Everything went well.
For
three weeks, Joseph stayed at the hospital growing and getting
even
stronger. He just had to show them doctors that he could
take
his bottle without any problems and put on some weight. We visited
every
day to tend to our sweet Joseph. We bathed him on bath
day,
fed him his bottle feedings, read scripture to him, and held
him.
We let Joseph know how much we loved him and gave
him
all the encouragement he needed to succeed in what he needed
to
do to come home. His brothers and sister stayed at Grandma's
and
Grandpa's house while we tended to Joseph. It was a trying
time
for us as a family but God gave us the strength to get through.
Finally,
on January 22nd, our beautiful Joseph got to come home.
What
a glorious day!
It
was so wonderful to finally have him home. Our lives were able,
to
some extent, to return to normal. The kids were so excited to
have
their baby brother home. They all had something special they
did
with or for him: read to him, sing to him and rock him to sleep.
No
one could get enough of tending to him. It was fun watching him
take
his baths in the kitchen sink. And they way he would stare
at
you when you talked to him. Everything about him grabbed your
attention
and heart. He was just so easy going and happy. How
blessed
we were to have been able to love him with all our hearts.
Then,
on February 22nd, Joseph had to be put into the hospital. About
a
week earlier, he had developed a cough. Nothing major at that time.
He
had a doctor's appointment two days after he started coughing so
we
mentioned it to his doctor. He listened to him and said it wasn't
anything
to worry about but just to watch it. Two days later, it sounded
more
congested so we took him again. The doctor ruled it as bronchialitis
and
put him nebulizer treatments. They didn't admit him then because
his
oxygen level was doing good.
We
took him home and began those neb treatments as needed. We even
made
arrangements with the neighborhood fire department to come
and
check his oxygen levels for us at least once a day. We needed
to
be sure he was getting enough oxygen and to confirm that the neb
treatments
were working. By Sunday afternoon, our Joseph did not look
right.
He was pale and sleepy. But he was still eating at that time. We
decided
to take him in to urgent care for further examination.
Upon
arrival, they were very concerned because his oxygen levels were
low.
So, they started him on oxygen right away. Then, they were
concerned
he might have RSV and so decided to admit him into the
hospital
to be treated for that. We waited 6 hours for a room since
the
hospitals were all full with other sick babies. Finally, they made room
for
Joseph. We were even able to stay with him in the room. They
kept
him on oxygen and neb treatments plus they tested him for RSV.
Early
Tuesday morning, after he had nursed, his heart rate began
to
rise. This was not good. Then, they came in and wanted to
do
another x-ray of his chest and check him out more thoroughly.
Turns
out he tested negative for RSV and positive for pneumonia. Also,
his
white blood cell count was at 64,000. 10,000 is normal range.
Joseph
was a very sick little boy. They were very concerned over his
oxygen
level and needed to intubate him right away. I held him once more
while
we waited for them to get everything ready then they whisked
him
away to a room in PICU. How much I wanted to go with him but
they
wouldn't let me. The doctors wanted to get him settled first.
The
next 45 minutes were so long. Daddy was not there when this was
all
happening because he still had to do his paper route job. I was
keeping
daddy up to date on everything, calling every time something
happened.
He was hurrying to finish his route so he could get to the
hospital
and be with me and Joseph. By the time he showed up, I had
packed
up our stuff from the room we were in and was waiting in the
PICU
waiting room. I had not yet seen Joseph since they took him.
Right
as Daddy arrived, the nurse came to get us to go and see Joseph.
I
was not prepared for what I saw. My son was sedated, with a tube down
his
throat to help him breathe, and a few different IVs coming out of his
little
body. He was diagnosed with pneumonia, a very high white blood cell
count,
and things did not look good for him. The doctor reminded us often
that
he was a very sick little boy. But still no one knew what was making
him
so ill. They continued to treat him with several different antibiotics,
ran
test after test, and still had no clue what was making him so sick.
Our
doctor plus the other doctors treating him continued to research
for
answers and nothing came up to help our Joseph. By Friday, his
chances
of survival did not look any better but worse. They were in
the
middle of trying to revive him for the second time when God told me in
my
heart to let him go. So, I turned to my husband and said "We need
to
let him go.This is enough." Those were the hardest words I've ever
had
to say. So, we agreed that no more intensive treatment was to be
administered
to our son. That we would just let his body do its thing
and
when it reached the point that he was near leaving us that we would
like
him disconnected from the machines and placed in my arms.
So,
at about 9:20 p.m., Joseph was wrapped in his baby blanket then in
a
quilt and placed in my arms. Oh, to hold him again was what I had
missed
the most that week. From the moment he was intubated I could
only
touch him but not hold him. And now...he was in my arms for one
last
time. Daddy, the brothers, and his sister were all there as we
sang
to him "Tell Me Why" then talked to him and loved on him. It was
that
evening that our doctor suspected he might have came down with
Pertussis,
whooping cough. But even with a possible diagnosis, they
couldn't
save his life. Joseph went home to be with the Lord that night
while
surrounded by his family and in my arms.
When
I think back on that night, I remember how strong my children
were,
including Joseph. Joseph amazed the hospital staff in the PICU at
how
hard he fought to live. Then, our other children had hearts full of wisdom
that
reminded me of God's sovereignty. Our oldest child said it best.
While
I was standing beside Joseph, telling him it was okay to stop
fighting,
reminding him that I loved him so very much, my oldest child
leaned
in and said to me "Mom, this is a win-win situation." I looked
at
him and said "What do you mean?" He said "If Joseph gets better, he
gets
to come home. If he doesn't, he gets to go Home."
"Weeping
may remain for a night,
but
rejoicing comes in the morning."
~
Psalm 30:5b ~
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